|Post Early Morning Run and Kyndall WOD at the Carribean Beach Resort
Ever since I headed into Orlando, this trip has been a bit of a roller coaster. From the weather (which included a steady downpour just about all day) to the emotions of things going on at home, it's been a bit of a crazy time.
But crazy in lots of goods ways. I can't beat being in Disney World with a friend. TheNurse and I travel well together. She's put up remarkably well with my travel-style (which has included a steady diet of WODs, runs, and healthy foods) and we've had fun logging miles around the theme parks.
Just as I was complaining about yet another delay in our adoption process. I got a beautiful gift and a reality check all rolled into one.
While our adoption the agency was busy apologizing (literally, the email from and agency worker said, "Again, I truly apologize for all of this. Shouldn’t be this difficult or frustrating of a process!") for never filing for My Sailor's clearances for one state, Kyndall's family was dealt a pair of stronger blows. In the first, CCS (California Children's Services) had a budget cut (in October of 2013, but it's just becoming truly active now). In a letter, they "apologize that we will no longer be able to provide the vital equipment and services needed by your child." As if their situation weren't challenging enough, due to budget cuts to cover other medical services, Kyndall suffers.
On the other side of it, Kyndall was also nominated as a Make A Wish kid. I'm excited to see her wish come to fruition, but at the same time, it's further proof that their time with her is growing short.
The former is a huge hurtle. The latter is a blessing, despite the pain of being in the position they are in.
Somewhere in between - is me.
Kyndall's story has gotten much bigger. This article I wrote a few weeks back has been picked up by an AM radio station in Los Angeles, and a major epilepsy advocacy group is also sharing and discussing it. (Seizures) are a big problem for Kyndall, and, since she is the only one with her genetic mutation, her family has plugged into various epilepsy groups for support.
That said, I found myself in tears last night when Kyndall's mom told me the news about the spread of the article and Kyndall's story. She thanked me for sharing it. While I'm happy to be a blow horn for them, part of me can't help but feel a bit wrecked at the same time. I know I'm not alone in the mixed feelings about all of this. On one hand, I do believe we can learn a lot by sharing our journey's with the world. Each one is unique, no matter how brief it might be. With that in mind, I can't hep being excited to see the reach of Kyndall's journey. The other part of me is still angry that this is her, and her family's journey. Watching from a distance while my friends learn to struggle through all of this... definitely not the way anyone wants to gain notariety.
Just when I wondered if I'd have enough 'fuel' left for the run today...
I've been so blessed to have some amazing people in my life. From The Nurse who has put up with (and participated in) every workout I've thrown at her on vacation, but all of my friends back home continue to support me.
No matter how the challenge goes tonight. I'm a lucky girl.